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THE STRESS OF CHRONIC ILLNESS
When you are taking care of someone who is chronically ill, you probably
put your own needs on the back burner. After all, you're not the one who
needs attention and help, right? In truth, being a caregiver can be very
stressful. Use good coping skills to take care of yourself. You'll prevent
depression, resentment, and burnout, and take better care of the patient.
In caring for a chronically ill person, you can face many problems.
You may worry about medical advice and costs. If the person is elderly,
you face the problems of aging as well as the illness. If the patient
is a child, you face problems such as how to continue their education
and social activities. Marriage and other family relationships may be
strained. You have less time and energy to spend on them. You may still
need to work in a paid job, which has its own pressures. You may have
stopped taking time for yourself, or given up things you enjoy. This can
make you feel tense, grouchy, or nervous.
Caregivers may not want to think about their own situation. At the beginning
of care taking, they feel hopeful that the situation will improve. If
it doesn't, they feel depressed that there is no end in sight to the hard
work. It can be hard for caregivers to admit negative feelings about their
role. If the patient is angry or resentful, he or she will probably take
it out on the closest person: the caregiver, who often feels confused,
guilty and resentful, too.
People who try very hard to meet everyone's demands still can feel selfish,
inadequate, angry, sad and exhausted. Admitting and accepting these feelings
will help the caregiver continue to give care. Holding them in will only
continue them and lead to burnout.
Practice these coping skills when-ever you can:
For yourself:
- Find support by talking with others in a similar situation.
- Take time for yourself. Exercise regularly and eat well.
- Ask for specific help from others.
- Let the patient and others know you need to feel appreciated.
For the patient:
- Find the best medical care you can. Get second and third opinions.
- Help the patient stay involved with past interests and relation-ships.
For everyone involved:
- Be realistic and honest. Discuss with the entire family each person's
limits in the situation.
- Use available resources in your community.
- Give and receive love and appreciation whenever you can. This will
sustain you.
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